Pediatric Urology Case Reports

25-34

Authors: Kamyar Kalantar-Zadeh, Philip Kam-Tao Li, Ekamol Tantisattamo, Latha Kumaraswami, Vassilios Liakopoulos, Siu-Fai Lui, Ifeoma Ulasi, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Tess Harris, Anne Hradsky, Richard Knight, Sajay Kumar, Maggie Ng, Alice Poidevin, Gamal Saadi, and Allison Tong, for the World Kidney Day Steering Committee

Living with chronic kidney disease (CKD) is associated with hardships for patients and their care partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re engagement in life, including an emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be PEDIATRIC UROLOGY CASE REPORTS ISSN 2148-2969 http://www.pediatricurologycasereports.com Pediatr Urol Case Rep. 2020; 8(2):25-34 26 supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.

40-43

Authors: Luiz G. Freitas Filho, André Lazzarin Marani, Luiz Felipe Brollo, Natasha Mourão, Bruna Cecilia Neves Carvalho, Luiz J. Budib

A four-year-old boy presented painful episodes of priapism always before emptying the bladder since he was two years old, which led to investigation for a possible arteriovenous fistula of the perineal vascular system or a cavernous artery hyper flow. Following different exams in an attempt to establish the diagnosis, the child, actually, was found to have posterior urethral valves. The diagnosis was totally unforeseeable and the urethral valves endoscopic treatment reduced the priapism events with a positive effect on the disease.

49-54

Authors: Kevin Nguyen, Mark Pisaneschi

We present a case of ectopic urethral ureteral insertion in a 2-week old female diagnosed on a voiding cystourethrogram after abnormal prenatal and postnatal renal ultrasounds. The case is remarkable due to initial opacification of only the left upper pole moiety without bladder opacification on the voiding cystourethrogram due to direct canalization of the left ureter. Prompt diagnosis is important to prevent frequent urinary tract infections and urinary incontinence with lower ectopic urethral ureter insertions. Voiding cystourethrogram is an important tool in the workup of renal anomalies and is typically used to evaluate for reflux, however, keen attention can reveal other abnormalities such as ureteral ectopia in rare instances.